On March 9, to raise money for children's charity ALD
A benefit gig will take place tomorrow (Sat 9th March ) at 8pm at the Gunnersbury pub in memory of Alex Hunt who died aged 19 from a rare condition.
Paradise 9 with special guests Essex based psychedelic outfit Deviant Amps plus Chris Bowsher , front man of underground pioneers Radical Dance Faction (RDF), and compere DJ Kosmic Ken will play at The Gunnersbury pub, Chiswick High Rd (opp. Gunnersbury tube), London, W4 5RP.
Alex, who died a few days before Xmas, aged 19, suffered from the condition Adreno-Leuko-Dystrophy (ALD). He had been battling this l disease since the age of 7.
A normal healthy boy, he started developing the symptoms of ALD from that age, but as the disease is so rare, it was not diagnosed until too late. ALD is a terrible disabling condition that leads to progressive paralysis.
Sara Hunt, Alex's mum, set up the charity ALD LIFE, a charity that helps promote awareness, research and prevention of Adrenoleukodystrophy and Adrenomyeloneuropathy. It also gives support to families affected by this terrible condition. Sara has now successfully set up three charity shops in London, and a fourth is about to open shortly. ALD LIFE are also campaigning to get screening for this condition in new born babies, as has been implemented in California recently.
Alex, a keen Liverpool football fan, attended a few of Paradise 9's gigs and festivals, and the band was honoured to be asked to play his 18th birthday in 2010.
The gig will be dedicated to Alex, celebrating his life, and all proceeds will be going to Sara's family and the ALD LIFE charity.
March 8, 2013